Validating a nursing research survey
Potentially eligible patients were identified by a study nurse after reviewing the hospital record and in consultation with the attending physician, medical residents, or responsible nurse. Table 1: List of Questions Included in the Final ACP Questionnaire.
Patients unable to communicate due to language limitations (English or French only) or cognitive reasons were excluded but if their family member was available, we still approached the family member. Have you ever considered or thought about what kinds of life-sustaining treatments such as CPR, breathing machines or dialysis you would want or not want in the event your relative’s health deteriorated? In the initial pilot in English-speaking respondents, we approached 19 eligible patients and 16 eligible family members; 15 patients and 16 family members provided informed consent.
To further minimize the overall burden of the study to the patients and to gain a different perspective on the evaluation of the questionnaire, acceptability was assessed by the study nurses after the interview and thus, the results reflect their assessment of the clarity, sensibility, and acceptability of the questionnaire in a French-speaking population.
For the French pilot study, the results were similar.
Conclusions: This is the first ACP questionnaire to be developed that has face and content validity.
In a recent randomized trial done in Australia, more than 300 patients 80 years or older were randomized to participate in ACP or usual care.
Of those who received the ACP intervention, 108 (84%) expressed wishes or appointed a surrogate, or both.
Revisions were made based on that experience and feedback from content experts and this questionnaire was then piloted in another sample of French-speaking respondents.